more setbacks, what do i do?????

Well after the phone cal from the clinic I decided to write to the HFEA (UK's governing body for infertility) aond this is the reply I got:

Quote:

Thank you for your enquiry of the 1st February 2007. The HFEA does not set guidelines for hormone test, this will be policies of the individual clinic and on the clinical judgement of your clinician. I would recommend contacting Infertility Network UK (www.infertilitynetworkuk.com) as they will be able to provide more information about this. A list of the clinics offering egg sharing can be found on our website in the 'For patients' section. I am sorry I cannot be of more help.

So I then wrote to the Infertility network as they suggested, this is what I wrote to them:

Quote:

I have been in touch with the HFEA, and they have pointed me in your direction for guidance on my current situation, I am wondering what the general stance is on the outcome of hormone blood tests (in particular FSH levels) for being accepted for egg sharing IVF. Last April/May I had a series of blood test done in particular my FSH level, I understand that a woman has to have an FSH of less than 8 to be accepted, mine came back as 10.1, I was told that I would not be accepted at this time, I did some research and found out that one of the possible reasons for a raised level of FSH is stress, which fitted my status at that time as I had just lost my MIL and was sorting out her estate when I had the test done, reluctently we went ahead with IUI in the September and I had another FSH test done which came back as 7.7. I have since moved clinics and my notes have been transfered over, and I have been told that I will not be concidered for egg share as one of my past FSH level tests came back higher than 8, surely the tests should be done over a period of 3-6 months and take the average of the results due to natural fluctuations in hormone levels, and take into account extenuating circumstances - such as sudden periods of high stress. I am due to have another test done (scheduled for 13th February) surely that should be the result to go with now as the other test is almost 12 months old and will in no way reflect my bodies current status especially when all the other basic tests associated with having IVF have to be repeated on a six monthly basis rather than accepting the first findings. I am a childless 34 yrs old woman and egg share is the only option open to me for realising my dream of conceiving a child, as I am not in a position to be able to afford IVF treatment without it, therefore I would welcome any guidance / assistance you may have on this issue.

To which they replied if I don't get any joy from my current clinic, to change clinics

So I sent an email to the clinic's head office in London:

Quote:

Hi, I have been in touch with both the HFEA and infertility network, and they have told me that I need to speak to you to see if you are willing to re-consider my current situation as there are no hard & fast rules laid down with regards to how FHS levels are dealt with. A brief overview of where I am at: Last April/May I had a series of blood test done in particular my FSH level for acceptance onto the Sheffield Cares egg share programme, I understand that a woman has to have an FSH of less than 8 to be accepted, mine came back as 10.1, I was told that I would not be accepted at this time, I did some research and found out that one of the possible reasons for a raised level of FSH is stress, which fitted my status at that time as I had just lost my MIL and was sorting out her estate when I had the test done, as a result we reluctantly went ahead with a single cycle of IUI in September and I had another FSH test done which came back as 7.7. I have since moved from the Sheffield Care clinic to yourselves in Darlington, and my notes have also been transferred over, I got a phone call from the Darlington Clinic last week and I was told that I will not be considered for egg share as my first FSH test came back higher than 8, surely the tests should be done either over a period of 3-6 months and take the average of the results due to natural fluctuations in hormone levels, and take into account extenuating circumstances - such as sudden periods of high stress, or have the tests re-done every 6 months. I am due to have another test done (scheduled for 13th February) surely that should be the result to go with now as the other test is almost 12 months old and will in no way reflect my bodies current status especially when all the other basic tests associated with having IVF have to be repeated on a six monthly basis rather than accepting the first findings. I am a married, childless 34 yrs old woman and egg share is the only option open to me for realising my dream of conceiving a child, as I am not in a position to be able to afford IVF treatment without it, therefore I would welcome any guidance / assistance you may have on this issue. I look forward to hearing from you soon,

To which they replied:

Quote:

Dear Mrs Robinson Thank you for your email. I fully sympathize with your situation. However, the egg share programme aims to offer a good chance of success to both donors and recipients with no compromise to either. Unfortunately, when there is a situation where FSH levels have been raised, even if they are normal in another cycle, this may not be the case and this is difficult to predict with certainty. Based on these observations the current clinic policy is not to offer the egg share option if the FSH level has been raised above 8 IU/l. I am very sorry to disappoint you but I wish you every luck for the future. With best wishes Mrs Shailaja Nair MD FRCOG Consultant Gynaecologist The London Women's Clinic

So now what do I do?????????????????????